Patients

Additional Resources

In an effort to provide patients and their families with access to the latest and most valuable resources related to chronic diseases of the blood, we have compiled the following list of links. These links will take you away from the company’s website, but connect you to other trusted providers of information that we think may be useful to patients and their families.

Patient Advocacy Groups:

Sickle Cell Disease Association of America (SCDAA)

U.S. Hereditary Angioedema Association (HAEA)

Sickle Cell Society (UK)

Government and International Agencies:

National Institutes of Health/National Heart, Lung and Blood Institute

NIH’s SCD Guidelines Issued September 2014

Centers for Disease Control and Prevention

World Health Organization

Scientific Societies/Organizations:

American Society of Hematology (ASH)

National Organization for Rare Disorders, Inc.

Academic Research Centers:

Harvard Medical School’s Joint Center for Sickle Cell and Thalassemic Disorders

Additional Resources for SCD Information:

Emory University Sickle Cell Information Center

ClinicalTrials.gov